Adult Leadership Committee


The deadline for submitting your survey has been extended to mid November.

More information about the survey below:

The Adult Leadership Committee (ALC) of FASD Change Makers wants to know what life is like for teens and adults who are 16 years and older who have diagnosed FASD, or who think they have FASD but do not have an official diagnosis.  This is an important topic that no one has surveyed yet.  We (ALC) plan to change that and need your help to get this survey to as many people who have FASD think they do as we can.

As there is little known about what life is like for adults with FASD, and very little to no comparison information of what we are asking about is available for the general population, we are also asking for a large number of people 16 years and older, who do NOT have FASD and do NOT think they do, to also complete this survey.  We want them to serve as a kind of control group so we can try to compare things if we can.

We need your help to do this.  You can participate in this survey in either capacity no matter where you live in the world.  Just click on the correct link  for you:

(diagnosed or undiagnosed FASD):

There is a lot of interest in what individuals with FASD have to say.  We hope to present this information at the 9th International Conference on Adolescents and Adults with FASD which will be held April 22-25, 2020 in Vancouver, BC, Canada.

The deadline for submitting your survey has been extended to mid November.

If you have any questions about the survey, please email:

— FASD Change Makers (Myles Himmelreich, CJ Lutke, Katrina Griffin, Justin Mitchell, Anique Lutke and Emily Travis-Hargrove)